No doctor identified and treated the staph |
People would think that she'd been in an accident |
She would scratch herself raw |
Tomato put on a lot of weight from all the oral steroids |
She always looked ill |
Even when she was joking around, she was sore |
So where are we now on the Aron Regime? We are down to 3-4 applications per week and Tomato recently started SWIMMING!!! She swam, rinsed off immediately and applied cream and we haven't had any issues. The delight on her face when I said "get your cozzie, you're swimming too" was priceless!!
If you missed my earlier posts on how I found Dr Aron and our journey so far, I have created links at the bottom of this post, together with some additional information about Dr Aron, where you can catch up.
The last 9 months have opened my eyes to a plethora of new things, here are just a few:
People think I'm crazy (ok full disclosure, they may have thought this before!)
The only doctor who could help us, I found online. What?? I can see people thinking I'm cuckoo, especially when I tell them I've still never met the man who gave us our child back. People usually start asking if he's a REAL doctor and probably think I'm using an "eye of newt and toe of frog, wool of bat and tongue of dog" type of potion to get the results we have had. I've learned that the Internet is not all bad and not everyone is trying to rip me off (this was a huge one for me to wrap my mind around because I am very suspicious by nature). Living in Africa, I am bombarded by con artists on a regular basis, so I am pretty savvy when it comes to weeding out the rif raf. I often need to explain that Dr Aron is a qualified Dermatologist who has practised for over 40 years AND the ingredients in the cream are readily available creams but are not the same for everyone, it is a doctor's prescription based only on my child's skin specifically and it's not brewed in a witch's pot, it is mixed specially for me at a pharmacy.
Cooling with Avene water |
I really cannot count the number of doctors and specialists that we have seen over the years for Tomato's skin and only 3 stand out as being willing to go above and beyond. Only 3 doctors saw me and my child broken and desperate and not just as another transaction in their full diary, to see, get their consulting fee and forget about once we'd left. Caring doctors, who treat patients as people and not sausage machines, are very few and far between. Dr Aron is number 1 on my top 3. For the cost of one consultation so far, I have contacted him many times and he has always responded promptly with sage advice, helping me to taper down on the cream or assisting with a flare or cautioning me against being over confident, with me wanting to reduce applications too quickly. I have never had such continuous access to a specialist as I have now with this amazing man. This has reduced the entire family's stress levels, astronomically. We no longer live in fear. If there is a flare up, we will handle it, we don't have to go back to where we were.
Tomato, full of fun and loving that she can swim again!
Support for The Aron Regime
Whilst Dr Aron offers online consultations on his website he does not run the closed Dr Aron Eczema Treatment Discussion Group or the open Dr Aron Eczema Treatment Information Page on Facebook. These were set up by parents and are administrated by parents, whose sole aim is to share this amazing treatment with others and to put an end to the suffering. Patients and parents helping each other. Young patients have also set up and now manage Dr Aron Instagram and Twitter accounts.
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People can't believe that we take time out of our busy lives to offer advice and support to others who are going through what we have all been through before. We sometimes get lambasted from new members who think we're all part of the group to make money by coercing unsuspecting people onto this regime, but in reality, there is no money to be made. Dr Aron writes the prescription (with 5 refills) but the patient's doctor needs to re-write it, so there's no money changing hands apart from the initial consultation fee and perhaps another one further down the line when a new prescription is needed. For the amount of time Dr Aron has given me, for the one fee that I have paid so far, that is the best deal I've had from any medical professional EVER, never mind a specialist!! We are still using the first prescription 9 months later and have tossed all the other medications and creams which cost a small fortune.
Dr Aron is her hero |
Most of us were misled by doctors who were either unaware of The Aron Regime or chose to disregard it and we therefore believed that clear skin was impossible. Every doctor and specialist gave us the same advice. In our case we were told Tomato's life would never be normal. I couldn't and wouldn't accept that, but it almost broke me. We would have to manage the eczema with daily wet wrapping, chronic oral steroids, antihistamines and we were about to start photo therapy just to get some temporary relief. There was no way that Tomato's skin could ever be normal? Her disease was too severe? WRONG!!! All of them were WRONG. Dr Aron proved them all wrong. Tomato's skin is as clear as her siblings' and became that way very quickly on this regime. So it's time to give back, to raise awareness and help others discover this treatment, so children can have their childhoods and adults can start to live the lives they were destined to lead, without the itch.
"Eczema is not only a disease of the skin,
it's a disease of the soul"
I've been lacking motivation to finish this blog post that I started over a month ago. Revelling in the luxury of an Eczema-free existence, I woke to a message on the Dr Aron page which reignited my desire to finish this post. I was reminded that blogs help others. It's messages like this that make all the time and effort worthwhile. I had recently posted a particularly gruesome Eczema photo of a child's hand, together with photos taken after a few days on the Aron Regime, where the hand was healing nicely (of course!) The mom was thrilled with the treatment. Another mom browsing Facebook found the post and left this comment that hit me hard: "OH MY GOD!!! We have tried everything and this is exactly how my son looks. This is crazy!!!! I thought I was all alone and such a bad mom. Please please tell me how?!"I get it. I know EXACTLY how this mom feels. Why hadn't she found this treatment earlier? Can it be true? Why have all the doctors given us something that doesn't work? She feels like a bad mom but she is far from it. So if anyone wants to know why we do it, this is why we do it. This mom now has options and I have managed to make her life brighter by giving her the hope that I experienced 9 months ago when other parents offered me hope. Hope is the only light out of "that dark place."
Passion
One man, with a passion for treating patients with Atopic Eczema has successfully treated over 6 000 patients world-wide through offering online consultations. Without Dr Aron stepping out of his comfort zone to offer this service, many people would still be suffering. His passion has ignited a passion in many others who are creating a groundswell to get the Aron Regime recognised. Even a small effort can reap great rewards. You don't need to spend hours like we do, just share this post. You never know who you may be helping out of their own dark place that you know nothing about.
Informative Links
The Day I found Dr Richard Aron and Our Healing Journey BeganThree months later after starting with Dr Aron
A British Doctor is Having incredible success treating stubborn eczema
Dr Richard Aron's Website
Mom's VLOG (video blog) of her experience with the Aron Regime
#eczema
#exema
#excema
#draron
#skindisease
#hopeforeczemasufferers
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